Rarenote,
a platform for providing personalized information
on rare diseases
Rarenote is a service in which rare disease patients can identify medicines under development that are suitable for their needs and participate in clinical trials, based on the health data they upload on the platform.
Rarenote,
a platform for providing personalized information on rare diseases
Rarenote is a service in which rare disease patients can identify medicines under development that are suitable for their needs and participate in clinical trials, based on the health data they upload on the platform.
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Service
Introduction
Latest Medical News
Specialized content made easy
Patients can now conveniently find the latest medical news in Rarenote. The news section is updated regularly with information on all areas related to the rare disease of interest. All content is created by our Scientific Material Development team and reviewed by medical professionals.
Treatment Development Status
Treatment development process at a glance
When patients select their condition, the available treatment options, as well as the clinical stage of the treatment, can be seen at a single glance. The development status is sorted and listed by treatment type, research institution, and product name. Detailed information on status updates and related news is also given.
Genetic Testing Guide
Identifying the cause of the disease
As more than 80% of rare diseases are caused by mutations in the gene, it is important to accurately identify the genetic cause of the disease for a successful treatment. Rarenote gives a step-by-step guide on taking a DNA test and helps patients to better understand the test results by providing patient-friendly genetic test reports.
Managing Health Data
Using patient data to accelerate treatment development
Patients can upload medical reports and health questionnaires to systematically manage and track the progression of their disease. These health data* can also be used by pharmaceuticals and research institutions for new drug development.

By applying blockchain technology, all data is safely controlled and protected (AES256 Encryption) so that no data can be used without patients’ consent.
*Health data: Patients’ health data including genetic test results, medical treatment data, and symptom data.
Service
Introduction
Latest Medical News
Specialized content made easy
Patients can now conveniently find the latest medical news in Rarenote. The news section is updated regularly with information on all areas related to the rare disease of interest. All content is created by our Scientific Material Development team and reviewed by medical professionals.
Treatment Development Status
Treatment development process at a glance
When patients select their condition, the available treatment options, as well as the clinical stage of the treatment, can be seen at a single glance. The development status is sorted and listed by treatment type, research institution, and product name. Detailed information on status updates and related news is also given.
Genetic Testing Guide
Identifying the cause of the disease
As more than 80% of rare diseases are caused by mutations in the gene, it is important to accurately identify the genetic cause of the disease for a successful treatment. Rarenote gives a step-by-step guide on taking a DNA test and helps patients to better understand the test results by providing patient-friendly genetic test reports.
Managing Health Data
Using patient data to accelerate treatment development
Patients can upload medical reports and health questionnaires to systematically manage and track the progression of their disease. These health data* can also be used by pharmaceuticals and research institutions for new drug development.

By applying blockchain technology, all data is safely controlled and protected (AES256 Encryption) so that no data can be used without patients’ consent.
*Health data: Patients’ health data including genetic test results, medical treatment data, and symptom data.
What Rarenote can make happen
Shortening the Period of Developing New Pharmaceuticals
Clinical trials, conducted to test the efficacy and safety of a new drug, are the most time-consuming and expensive steps in the process of developing a new medicine. This is because it is tricky and difficult to recruit patients who meet the exact sophisticated requirements of a clinical trial.

Equipped with systematically organized health data, Rarenote is capable of quickly recruiting test subjects, thereby dramatically shortening the period of developing new pharmaceuticals.
Enhanced Awareness of Diseases
Rarenote can attract substantial benefits such as the development of news drugs from pharmaceutical companies, related government support and research funds, and widespread social consensus, by gathering scattered patient data in a single space and thus enhancing awareness of diseases.
What Rarenote can make happen
Shortening the Period of Developing New Pharmaceuticals
Clinical trials, conducted to test the efficacy and safety of a new drug, are the most time-consuming and expensive steps in the process of developing a new medicine. This is because it is tricky and difficult to recruit patients who meet the exact sophisticated requirements of a clinical trial.

Equipped with systematically organized health data, Rarenote is capable of quickly recruiting test subjects, thereby dramatically shortening the period of developing new pharmaceuticals.
Enhanced Awareness of Diseases
Rarenote can attract substantial benefits such as the development of news drugs from pharmaceutical companies, related government support and research funds, and widespread social consensus, by gathering scattered patient data in a single space and thus enhancing awareness of diseases.
All these changes can come sooner
with your participation.
Now is the time to open the first page of Rarenote!

All these changes can come sooner
with your participation.

Now is the time to open the first page of Rarenote!
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