Rarenote,
a platform for providing personalized information
on rare diseases
Rarenote is a service in which rare disease patients can identify medicines under development that are suitable for their needs and participate in clinical trials, based on the health data they upload on the platform.
Rarenote,
a platform for providing personalized information on rare diseases
Rarenote is a service in which rare disease patients can identify medicines under development that are suitable for their needs and participate in clinical trials, based on the health data they upload on the platform.
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Service
Introduction
Support for over 1,000 rare diseases
Providing global clinical trial information
Patients can find information on clinical trials from all over the world and select the ones only applicable to their own disease. The clinical trial stage, eligibility criteria, and study design can be seen at glance.
Special benefit for disease-certified users
Clinical trial notification and consultation
Patients can be notified when there are updates on clinical trials for their disease without the need to search on their own. In addition, 1:1 expert consultation allows patients to clear any doubts about participating in clinical trials*.
*Currently, it is only provided for some diseases as a beta test, and we plan to expand this service for more users.
Information by experts
Personalized and curated information
All patients and caregivers require different information depending on whether the patient has or has not yet been diagnosed, or is under treatment. Rarenote offers curated information tailored to each user's different needs by experts.
Towards the development of treatments with patient data
Health data management
Patient health data* uploaded to My Note can be used by pharmaceutical companies and research institutions to develop treatments for patients. The data stored in Rarenote is managed transparently and securely using the Advanced Encryption Standard(AES256) method. And blockchain technology makes sure that no data get used without patients’ consent.
*Health data: all biometric data, including genetic test results, medical reports, symptom data, etc.
Service
Introduction
Support for over 1,000 rare diseases
Providing global clinical trial information
Patients can find information on clinical trials from all over the world and select the ones only applicable to their own disease. The clinical trial stage, eligibility criteria, and study design can be seen at glance.
Special benefit for disease-certified users
Clinical trial notification
and consultation
Patients can be notified when there are updates on clinical trials for their disease without the need to search on their own. In addition, 1:1 expert consultation allows patients to clear any doubts about participating in clinical trials *.
* Currently, it is only provided for some diseases as a beta test, and we plan to expand this service for more users.
Information by experts
Personalized and curated information
All patients and caregivers require different information depending on whether the patient has or has not yet been diagnosed, or is under treatment. Rarenote offers curated information tailored to each user's different needs by experts.
Towards the development of treatments with patient data
Health data management
Patient health data* uploaded to My Note can be used by pharmaceutical companies and research institutions to develop treatments for patients. The data stored in Rarenote is managed transparently and securely using the Advanced Encryption Standard(AES256) method. And blockchain technology makes sure that no data get used without patients’ consent.
*Health data: all biometric data, including genetic test results, medical reports, symptom data, etc.
What Rarenote can make happen
Shortening the Period of Developing New Pharmaceuticals
Clinical trials, conducted to test the efficacy and safety of a new drug, are the most time-consuming and expensive steps in the process of developing a new medicine. This is because it is tricky and difficult to recruit patients who meet the exact sophisticated requirements of a clinical trial.

Equipped with systematically organized health data, Rarenote is capable of quickly recruiting test subjects, thereby dramatically shortening the period of developing new pharmaceuticals.
Enhanced Awareness of Diseases
Rarenote can attract substantial benefits such as the development of news drugs from pharmaceutical companies, related government support and research funds, and widespread social consensus, by gathering scattered patient data in a single space and thus enhancing awareness of diseases.
What Rarenote can make happen
Shortening the Period of Developing New Pharmaceuticals
Clinical trials, conducted to test the efficacy and safety of a new drug, are the most time-consuming and expensive steps in the process of developing a new medicine. This is because it is tricky and difficult to recruit patients who meet the exact sophisticated requirements of a clinical trial.

Equipped with systematically organized health data, Rarenote is capable of quickly recruiting test subjects, thereby dramatically shortening the period of developing new pharmaceuticals.
Enhanced Awareness of Diseases
Rarenote can attract substantial benefits such as the development of news drugs from pharmaceutical companies, related government support and research funds, and widespread social consensus, by gathering scattered patient data in a single space and thus enhancing awareness of diseases.
All these changes can come sooner
with your participation.
Now is the time to open the first page of Rarenote!

All these changes can come sooner
with your participation.

Now is the time to open the first page of Rarenote!
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